hatman: HatMan, my alter ego and face on the 'net (Default)
( Jul. 9th, 2014 01:15 pm)
In the week since I ran out of Xyrem, I've been sleeping a lot and feeling particularly exhausted. Not as bad as February, but well below par.

It's the middle of the night for me now. Slept about 3 hours. Woke up from a dream where I finally lost it and got seriously pissed off with the relative who has been living with us for the last several years. Not sure why, since he's been away for the last week or so. But maybe it wasn't really about him and he was just a convenient symbol. Anyway, I woke up from that because of the apnea, and now I can't get back to sleep.

I go through periods where I feel relatively okay. Tired, but functional. And then I just feel really tired, but push on. And then there are times where it feels like my mind is starting to crack (again).

I wish I could figure it out. Is this because of the Xyrem? If so, is it because the Xyrem was helping, and now I'm crashing because I don't have it? Is it because I'm going through withdrawal? Or is it the opposite? Did the Xyrem screw me up for a month, and I'm so tired now because I'm recovering from the damage it did? Or is it something else entirely?

It should be getting better, but I don't know. And it's hard to think.
hatman: HatMan, my alter ego and face on the 'net (Default)
( Jul. 6th, 2014 09:18 pm)
Slept 10 - 11 hours a night since I've been off the Xyrem. Plus the 12 hours to make up for waking up to see the sleep doc. Still flat out exhausted. I don't know if this is (supposedly nonexistent) Xyrem withdrawal, if I'm recovering from being on Xyrem (because it was somehow making things worse), or what.
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hatman: HatMan, my alter ego and face on the 'net (Default)
( Jul. 3rd, 2014 04:56 pm)
Dilemma!

On the one hand:

Man of Steel was an awful movie that was in no way about Superman and went out of its way to chuck all prior Superman continuity from any medium and any resemblance to a comic book movie.

Ben Afleck is attempting to play Batman. I must admit that he did a good job with a terrible script in DareDevil, but still...

The title "Batman Vs. Superman" is... let's just say "not promising."

On the other hand:

The movie will be Wonder Woman's first feature film appearance. Second, if you count the Lego Movie. (Yeah, take a second to absorb that.)

Given that... do I see the movie or not?




In other news: I slept 12 hours to make up for not sleeping yesterday (because I had to go see the sleep doctor). Took me two hours to get out of bed, and I'm still too tired to think.
hatman: HatMan, my alter ego and face on the 'net (Default)
( Jul. 2nd, 2014 12:58 pm)
Good news: New restaurant site is looking very promising. Negotiations have not formally opened, but I'm optimistic.

Medium news: Saw the sleep doc. She's going to look into getting me medications. But it might take a while.

Bad news: In order to see the sleep doc, I had to wake up at 10. I'm semi-nocturnal now, so I didn't get to sleep until 6. And my blood sugar was high, so I did not sleep well. Also, it's hot and humid today. So, basically, I feel like total crap. And it's supposed to be raining for the next few days, so the humidity isn't going away any time soon. Just have to wait it out and try to rest up as best I can.
hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 30th, 2014 08:37 pm)
Not having a good day today. Don't know why, but I'm just tired, woozy, and in pain. Yay.

Also, I'm almost out of Xyrem. They were supposed to have called me today about their discount program, since insurance denied it. Seeing the doc on Wednesday. I'll see what she's come up with. We may decide to give up on Xyrem for now and try the other medication (for the non-24 thing), since the two apparently may conflict. I'll see what she has to say. (Unfortunately, I'm semi-nocturnal right now and she only has morning appointments. So I'm going to have to miss half a day's sleep. Ironic, no?)

I wish I could tell if the Xyrem was really helping me, but the trips I've taken have disrupted my sleep enough that I just can't be sure. Would I be even more tired right now if not for the medication? Or has it had no appreciable effect? Maybe I should see if I can get another sleep study done.

Side note: I'd filter these entries so as not to clutter your feeds, but one of the few people who actually does still read my journal is using RSS. And I figure I'm posting at most once a day, so it can't be that bad, right?

In other news: The deal to buy out the guy's restaurant lease fell through. We're looking at other locations again, and I'm stuck with the legal fees and everything else. I guess that's the way it goes. But we've got a line on a promising space. I'm excited about it. Rent is higher than I'd like, and it's currently a white box so I'm going to have a lot of build costs and inspections and whatnot. But it's a good location and a nice space and I'd rather put the money towards buying the equipment I actually want than give it to someone else to buy out his lease.

Sleep log for the last few days )
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hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 25th, 2014 04:34 pm)
Home. Finally. Good to be back in my own bed. Slept a lot last night. I needed it. What a year this is. Months of being too sick to do anything. Just as I get better, I drop everything to visit a friend (who thankfully is back home and seemingly doing well so far). Get half a night's sleep before flying out with the family to Colorado, but too tired to do much while out there. Did get a couple of good days at Rocky Mountain National Park, though. (Also, a sunburn.)

Got home to find that even though I'd given my cell number multiple times and specifically said I was away from home and not to call there and called back to tell them I still needed help... there was a message at home from a tech who mumbled something in a thick accent, left a callback number, and never bothered to check back or try the cell number.

Trying to catch up on sleep now. Kind of spacy from that.

In a few weeks, we leave for the annual family trip to MA. But I fly out from there to the meetup in London, then fly back to MA to be with the family. Not sure what's going on in September. Might have a friend come visit from Greece. Might drive out to see the friend again (who hopefully will still be out of the hospital and doing reasonably well). October, I fly out to Vancouver, where I'll be the registrar for VCON. No idea what happens after that. I can't remember when I've bounced around so much.

Sleep log )
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hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 21st, 2014 03:03 pm)
We live in a country where, thanks to President Reagan, we don't spend on infrastructure but spend more on defense than even the Pentagon wants.

Except that the highway system was originally developed in part in the name of national defense. Being able to move troops and supplies and equipment rapidly across the country is important.

Maybe therein lies the solution. If we could get the Pentagon to declare infrastructure spending as vital to national security, maybe we could actually start fixing our bridges before they collapse.
hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 18th, 2014 04:32 pm)
I'm really thinking that my CPAP needs to be adjusted for this altitude. But it's hard to find good information on that. I've checked a few sites. Supposedly, the CPAP I'm using self-adjusts for altitude. But there are several experienced CPAP users who say it still needs to be bumped up a bit. They say the math is easy, but don't provide any way to find out what the math is. I have calls in to my doctor and my CPAP supply company, but no one has called me back. I may just increase the pressure tonight (or set it to auto) and see if that helps.

Last night's report )
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hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 17th, 2014 12:16 pm)
Friend who was dying of cancer is not yet dead! Her prognosis seems to change by the day. Still, I'm glad I went. It did us both good.

Thing is that their income is very limited right now. With her that sick and a toddler running around, a job just isn't possible. Household income is mostly from disability, but it's now being supplemented by sales commissions.

If you're in the US and would like to buy makeup, lotions, jewelry, or the like, you can shop at their Avon page.

If you'd like some scented wax (sort of like a cross between scented candles and plug-in room fresheners), scented stuffed animals, and other such smelly things, you can browse the Scentsy page.

They won't take donations, but every sales commission helps. Signal boosting appreciated. They're good people, and this is the only way I have to help them.

The last week on Xyrem )

Sleep doc still hasn't called me back. I need to know if she's taken care of the insurance paperwork, when I'm supposed to see her again, and why my apnea last night was so much worse than it's been in ages. Tried calling just now, but no one picked up. Will try again in a bit. Maybe it's lunch break?

ETA: Insurance denied the Xyrem. Doc is working on it.
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hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 10th, 2014 11:35 am)
A good friend who has been slowly dying of cancer took a sudden turn for the worse. I'm looking into dropping everything to fly out there tomorrow.

In other news:

Xyrem day 4 )
hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 8th, 2014 09:20 am)
I'm probably going to be doing daily reports on my night's sleep for a while. To keep a log for myself as I try this new medication, if nothing else. I'll put them under cuts to spare the rest of you. Or at least I'll try to remember to do so.

Read more... )
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As you may know, I've been planning to open a restaurant. It's been a long road. You can read more about what I'm doing and why in this entry. Back then, I was thinking of a bakery. That's now morphed into a restaurant.

The idea is not just to make money, but to try to make the world a better place while I'm at it. We'll be reaching out to homeless shelters, veterans groups, and disability services to send us job applicants. We'll use locally sourced and fair trade ingredients as much as we can. We'll compost our waste and, if we can get permission from the landlord, use the resulting soil to grow herbs in a roof garden.

We still need to develop the menu. We had some ideas, but a lot depended on knowing the crowd we were serving. Now that we have a location (pending final contract details, landlord approval, etc.) we can start working on that. For the most part, we'll be focusing on simple food. Hamburgers and comfort food and the like. But we're going to try to make it interesting. That's one of the things I need your advice about. I'll get to that in a bit.

But we're not just going to be a cafe/pub/bar. We're also going to be an art gallery. The decorations on the walls will be from local artists. There's an art school not far from us, so we'll take some pieces from students there. There's no shortage of artists who live in Brooklyn, so we'll reach out to them. We'll encourage our employees to contribute, too. And we might just find some ways for our customers to make some things, if only by drawing on the placemats. If you see something you like on the wall, you can buy it. If, after a week or two, no one buys a piece, we'll return it to the artist and put something else in its place.

We've got a lot to organize and decide. We're still in the early stages. But there are a couple of things I'd like your help with.

First of all, we need a name. We've been racking our brains, tossing names back and forth, but haven't settled on something we really like. I'd thought of "Tikkun" (as in "Tikkun Aulam," Hebrew for "fix the world"), but I'm told the area is too aggressively secular. The best I've got right now is "Fair's Fare." I tried to think of what we wanted to convey, and the word "fair" just kept coming up. Fair wages, fair treatment, reaching out to people to whom the world has been unfair, fair trade, etc. And, as it happens, the homophone "fare" means food. But I feel like there's a better name waiting out there. Suggestions would be appreciated.

The other thing is that I've backed a Kickstarter for an illustrated geek cookbook. (Still ongoing, and heading for its first stretch goal! We're not far from unlocking a "Carbs Against Humanity" deck. Check it out!) It's from Kitchen Overlord, which already has some pretty cool books and recipes. The recipes are all for interesting and unique fandom-inspired foods which are simple to make and require no special tools. I was already thinking of incorporating some of her recipes into our menu. I don't think the neighborhood will support full-on geek theme, but a few geek items on the menu would probably go over well.

The Kickstarter, though, gives me a rare opportunity. My reward includes a custom recipe from the book, TV show, or movie of my choice. Which means I need to choose one. I need help.

I want it to be something with broad and lasting appeal. Something that non-geeks might relate to.

We're located in Brooklyn. So if it takes place in a recognizable city, it needs to be New York. Robocop would feel terribly out of place, for example. On the other hand, just about everything New York takes place in Manhattan, which tends to overshadow the outer boros (as you can tell by the term "outer boros"). So it's better if anything New York based includes the wider city, at the least.

Of course, it would also be cool if it was something that didn't have a White male lead. Who wasn't a sex symbol or a stereotype. (She once did a cake of Wonder Woman's one-piece uniform. Which looked cool. But I couldn't help but think of edible panties...)

Also: She's already done recipes from a whole range of fandoms. Which isn't to say we can't go back to those places. But the idea is to create a new recipe, and the obvious choice may already have been done.

Oh, and I'd rather it not be from a fandom that I personally don't like. (Sorry, Captain Janeway.)

Some ideas I've had:

Ghostbusters (takes place in NYC, includes trips outside Manhattan, has broad appeal)

The Fifth Element (takes place in greater NYC, is fun and quirky)

Klingon cuisine (Star Trek DS9 included a Klingon restaurant. The food would definitely be unique and memorable, and Chris-Rachel can likely find a way to make it actually taste good.)

Star Wars (very broad appeal, plenty of planets to choose from, a new crop of movies due out soon)

Metroid (strong female lead character, a first in action gaming, and still exceptional)

Portal (reasonably popular, features a female lead. Of course, the only obvious food choices are a very specific cake which has been made by others or a baked potato)

Galaxy Quest (fun and quirky, with a variety of possible food inspirations)

Jules Verne (still popular after more than a century, quite possibly the founder of steampunk)

The Rocky Horror Picture Show (I admit I've never seen it, but it's clearly got a lasting following and some unique possibilities)

Girl Genius (strong female lead, great sense of humor, some interesting food possibilities, and steampunk should go over well in the neighborhood I hope)

Wonder Woman (strong female lead, popular character... just have to find something that doesn't involve eating her clothing or body)

Ms. Marvel (Carol Danvers is strong female superhero who is not a sidekick or a knockoff. I'm hoping she'll work her way into the Avengers movies one of these days. But not sure about food possibilities.)

The Avengers (Very popular geek franchise. Takes place in New York. We'll be seeing blockbusters from them for years to come.)

Superman (Metropolis is kind of New York. And Lois & Clark is dear to me.)

Batman (Gotham is another name for New York. And Batman is awesome.)

X-Men (takes place in New York state, has a wide variety of characters)

Mr. Terrific (Michael Holt is a highly skilled and intelligent Black superhero who does not have the word "Black" in his name and has the motto "Fair Play" on his costume. Unfortunately, very few people have heard of him. Also, I'm not sure about food possibilities. I'm not sure floating metal nannite spheres seem very edible. And I'm already planning to include the Kitchen Overlord recipe for Firefly Ice Moon in our menu rotation, so that fills our floating grey sphere quota.)

Any votes out of that? Other suggestions? Chris-Rachel has offered to make a poll for me on her website, but I'd like to narrow things down from this list before we do that. Also, I'd like your considered input.
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hatman: HatMan, my alter ego and face on the 'net (Default)
( May. 10th, 2014 04:30 pm)
So this ad about "non-24" has been showing up on my TV lately. (Apparently, there was also a radio spot. Which makes a lot of sense. But I don't listen to the radio very much these days.

On the one hand, it's kind of weird. I always knew my free running sleep schedule was primarily associated with people who are blind. No one knows why I don't respond to light cues. But it's still strange to see my little medical quirk advertised as something that only happens to the totally blind.

On the other hand, it's cool to see awareness of the issue being pushed on national TV. And, more importantly, a new drug that might just be able to fix it. (Of course, there are other things that are supposed to work on the same receptors, and they have not done well for me. But still... new thing to try!)

The video on their website (well, one of five different websites I've found for this thing so far) is longer and explains things better.

This is one of two new medications my sleep doctor will be trying me on. We'll see how it goes.
The annual Brenda Novak auction for juvenile diabetes research lasts throughout the month of May. Brenda is a professional novelist, and gets donations from a lot of people in the business.

For readers, there are ereaders, signed books, advanced copies of books not yet on the market, naming rights to a character in an upcoming book, and more.

For writers, there are consultations with professional editors and agents, promotional opportunities, and more.

There are plenty of other things up, as well. Unique vacations, backstage passes to a Celine Dion concert, jewelery, crafts, gift baskets, etc.

All proceeds go to research into curing juvenile diabetes.
hatman: HatMan, my alter ego and face on the 'net (Default)
( Apr. 29th, 2014 05:06 am)
By the way, if you have a Comixology account, you can get a free copy of Sensation Comics #1. It's the second half of Wonder Woman's origin story, and it's kind of amazing.

Progressive for its time, yet still so blatantly sexist.

Also: The way she obtains her secret identity is just mind-boggling.
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