hatman: HatMan, my alter ego and face on the 'net (Default)
( Jul. 6th, 2014 09:18 pm)
Slept 10 - 11 hours a night since I've been off the Xyrem. Plus the 12 hours to make up for waking up to see the sleep doc. Still flat out exhausted. I don't know if this is (supposedly nonexistent) Xyrem withdrawal, if I'm recovering from being on Xyrem (because it was somehow making things worse), or what.
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hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 30th, 2014 08:37 pm)
Not having a good day today. Don't know why, but I'm just tired, woozy, and in pain. Yay.

Also, I'm almost out of Xyrem. They were supposed to have called me today about their discount program, since insurance denied it. Seeing the doc on Wednesday. I'll see what she's come up with. We may decide to give up on Xyrem for now and try the other medication (for the non-24 thing), since the two apparently may conflict. I'll see what she has to say. (Unfortunately, I'm semi-nocturnal right now and she only has morning appointments. So I'm going to have to miss half a day's sleep. Ironic, no?)

I wish I could tell if the Xyrem was really helping me, but the trips I've taken have disrupted my sleep enough that I just can't be sure. Would I be even more tired right now if not for the medication? Or has it had no appreciable effect? Maybe I should see if I can get another sleep study done.

Side note: I'd filter these entries so as not to clutter your feeds, but one of the few people who actually does still read my journal is using RSS. And I figure I'm posting at most once a day, so it can't be that bad, right?

In other news: The deal to buy out the guy's restaurant lease fell through. We're looking at other locations again, and I'm stuck with the legal fees and everything else. I guess that's the way it goes. But we've got a line on a promising space. I'm excited about it. Rent is higher than I'd like, and it's currently a white box so I'm going to have a lot of build costs and inspections and whatnot. But it's a good location and a nice space and I'd rather put the money towards buying the equipment I actually want than give it to someone else to buy out his lease.

Sleep log for the last few days )
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hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 25th, 2014 04:34 pm)
Home. Finally. Good to be back in my own bed. Slept a lot last night. I needed it. What a year this is. Months of being too sick to do anything. Just as I get better, I drop everything to visit a friend (who thankfully is back home and seemingly doing well so far). Get half a night's sleep before flying out with the family to Colorado, but too tired to do much while out there. Did get a couple of good days at Rocky Mountain National Park, though. (Also, a sunburn.)

Got home to find that even though I'd given my cell number multiple times and specifically said I was away from home and not to call there and called back to tell them I still needed help... there was a message at home from a tech who mumbled something in a thick accent, left a callback number, and never bothered to check back or try the cell number.

Trying to catch up on sleep now. Kind of spacy from that.

In a few weeks, we leave for the annual family trip to MA. But I fly out from there to the meetup in London, then fly back to MA to be with the family. Not sure what's going on in September. Might have a friend come visit from Greece. Might drive out to see the friend again (who hopefully will still be out of the hospital and doing reasonably well). October, I fly out to Vancouver, where I'll be the registrar for VCON. No idea what happens after that. I can't remember when I've bounced around so much.

Sleep log )
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hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 18th, 2014 04:32 pm)
I'm really thinking that my CPAP needs to be adjusted for this altitude. But it's hard to find good information on that. I've checked a few sites. Supposedly, the CPAP I'm using self-adjusts for altitude. But there are several experienced CPAP users who say it still needs to be bumped up a bit. They say the math is easy, but don't provide any way to find out what the math is. I have calls in to my doctor and my CPAP supply company, but no one has called me back. I may just increase the pressure tonight (or set it to auto) and see if that helps.

Last night's report )
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hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 17th, 2014 12:16 pm)
Friend who was dying of cancer is not yet dead! Her prognosis seems to change by the day. Still, I'm glad I went. It did us both good.

Thing is that their income is very limited right now. With her that sick and a toddler running around, a job just isn't possible. Household income is mostly from disability, but it's now being supplemented by sales commissions.

If you're in the US and would like to buy makeup, lotions, jewelry, or the like, you can shop at their Avon page.

If you'd like some scented wax (sort of like a cross between scented candles and plug-in room fresheners), scented stuffed animals, and other such smelly things, you can browse the Scentsy page.

They won't take donations, but every sales commission helps. Signal boosting appreciated. They're good people, and this is the only way I have to help them.

The last week on Xyrem )

Sleep doc still hasn't called me back. I need to know if she's taken care of the insurance paperwork, when I'm supposed to see her again, and why my apnea last night was so much worse than it's been in ages. Tried calling just now, but no one picked up. Will try again in a bit. Maybe it's lunch break?

ETA: Insurance denied the Xyrem. Doc is working on it.
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hatman: HatMan, my alter ego and face on the 'net (Default)
( Jun. 8th, 2014 09:20 am)
I'm probably going to be doing daily reports on my night's sleep for a while. To keep a log for myself as I try this new medication, if nothing else. I'll put them under cuts to spare the rest of you. Or at least I'll try to remember to do so.

Read more... )
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